Fibromyalgia

Is having major side effects to many medications a side effect of fibromyalgia?

I am a 17yr survivor of Fibromyalgia and CFIDS . Four I was bed fast. I couldn’t even take care of my own needs. I had always been very active an was a manager of a local Pharmacy. Of course, I had to resign after collapsing on Aug. 11 1992. With little hope from the medical community of getting any better,as I could, I did my own research. Many years went into this process. I found supplements which helped with the energy, brain fog and immune system. I also learned of breathing techniques which helped with pain, brain fog and energy. I found with herbs, how to remove toxins from the body and the importance of riding my surroundings of chemicals. My doctor saw so many improvements to my quality of life that she suggested that I write a guide to these helpful steps. In July , I had this guide published and it is doing well locally but I want many more to be helped by what I’ve learned through much trial and error. You may check out an article in the Sep. issue of “All About Women” magazine. It is on pg 55 or 56. The online version is a bit different than the hard copy. It is on http://www.aawmag.com. I think many would find it very helpful. Thank you so much for your time.

I was diagnosed with fibro. about 6-7 months ago after suffering with pain for about 1 year. i had back surgery about 4 years ago. about two months prior to diagnosis i got mono (EBV) and cytomegaly (CMV) virus I also had positive ANA test they ruled out lupus. I have been hospitalized two times with chest wall pain and placd on cardiac floor which they know very little about fibro. I am a RN so I know such. they actually put me through angiogram, stress testand whole nine yards of test. I told them i felf this as due to my fibro. after the third day of them just giving me dilaudid IV my MD showed up and increased my lyrica from 150mg a day to 300mg a day i am haviving probs. now with double vision and beeing very dizzy and sleepy, i still work full time as a dialysis nurse so im unable to take my lyrica until i get home, im also on cymbalta 60mg every day and xanax 2mg three times a day for panic disorder. I am allergic to NSAIDS. they did try soma which didnt help. please i need advise from some of you that have dealt with this disorder longer than i have. i am also at the point where i feel i cant continue to work full time…….please someone respond with any advise…..thank you patti

I have had Firbromyalgia for 29 years. I also have had chest pain and gone to hospital and had all the heart testing with no sign of heart attack. I have excercised at Curves and gone to Water Arobics. Cannot stress the body too much but walk everyday for 25-40 minutes and that helps but when starting out have lots of pain in feet and as I get halfway home the pain lessens. I am always in pain in every part of my body and can’t take Nsaids as they give me diarrhea and lots of bad gas and also pain in the kidneys. I have tried Amatriptoline 10mg and 25 but they make me so drousy and worsen my vision. I am legally blind with Macular Degeneration which I got in my late 40’s as in my case it runs in my family and I have Hereditory Macular so lost my licence to drive in l996 and I have Osteo Arthritis and two knee replacements, so I have been through the mill with Diagnosis of 18 of 18 pressure points for Fibro. I have multiple problems and lots to cry about but the way I deal with pain is mild excercise and busy my self with other things and try not to dwell on myself too much, whic is very hard to do. I rest everyday for 1 1/2 hrs anywher from 3:00 p.m. to or by 5:30 for an after dinner rest. Rest is important but you always get up feeling like you have just fallen off the back of a truck and into a ditch. Just get up and get moving and keep moving and when I can’t take the pain anymore I take 2 Tylenol extra strength and then take two more 12 hours later to break the pain pattern. You just have to think positive.

The sleeping is a problem but sometimes I drink a couple glasses of wine or rum is fine anytime of year and takes the pain away temporarily. Not to become accustom to drinking but now and then it works. It’s good to have a partner or family member or friend that can read the symptons of Fibro and that’s important having someone who understands what you are going through for support when you need to vent a little. But you can’t moan and groan too much it drives people away from you. I guess we just have to not smoke, eat healthy and have faith that there are sometimes spells when you have relief Not everyone can be so lucky as me to have a undrstanding partner. It’s something you just have to learn to deal with, but definitely mild excercise rather than taking medication which wrecks havoc with your kidneys and causes bowel problems is part of the answer. There doesn’t seem to be a cure. It certainly messes your mind up but if you can joke about it that helps also. Just remember, laugh and the world laughs with you, cry and you cry alone. I always recall that saying when I have a pity party with myself. Good luck and keep the faith. JM pardon any spelling errors as I am visually impared.

I have had fibromyalgia for some time now, and have started recently to have severe pain in the bottom of my feet, it feels like they are severely bruised, mostly on the heel area,it subsides when i get off my feet for a while. I also have severe back pain right in the area where my bra goes across my back , on the right side, mostly, i took lyrica for a while it helped tremendously, but my ahccs insurance wont cover it , so i am out of samples, and the withdrawal of it was terrible, hope someone finds a cure for this horrible disease, I wouldnt wish it on my worst enemy.